The good days, the bad days, the ugly days ....

It has been weeks since i have had the chance to open my laptop and try and blog......
so much has happened, normal routine things, hospital things, fun things. upsetting things.... i dont even know where to begin and it would be a long and boring read in places..... i could start at the beginning when Connor finished his Radiotherapy, and finish it now... a few weeks into his last 6 month long stage of NHS treatment but i would miss something important and would only confuse myself as so much has gone on, i have scraps of paper in front of me that have dates and events on but my memory is awful and i cant read my writing in places, sometimes ive just jotted significant things down right before bed but i cant for the life of me remember in which order they should go and this blog is important to us.... so many people want to know how Connor is doing.... so after thinking about it carefully and talking it through with rik, my partner and childrens dad we have decided to start blogging pictures when we cant find the time or the words to do Connors journey justice....

The pictures are dated from April, hours after Connor recieved his life saving operation to remove his  tumour ...we call them the God, Bad and Ugly as some are hard to look at, some make us smile and some break our heart but all the way though Connor keeps smiling...keeps fighting.

On the 11th September our youngest daughter Lola was 2 and the day after on the 12th September Connor turned 5, early on we were not even sure if he would make it to his next birthday but he celebrated in style with all his friends and family, days later his last stage of treatment started, and even tho we were warned of possible side effects... it still knocked us on our arse to see him suffering again, raging temperatures, shaking, hallucinations, pain, tiredness, tears and allergic reactions to new medicines .....no matter how many good days u get the bad always rears its ugly head and reminds u its not over....

We did get the chance to go to Euro disney on the 12th October for a few days thanks to the Magical Taxi Tour, it was an amazing trip and Connor and his big sister Ella were treated like royalty, is a real treat after long periods in hospital to be able to be a normal family and get spoilt for a change...


These hospital pictures are a constant reminder to us that no matter how well Connor is doing, how well he looks, there is still a huge chance his Cancer will relapse and it is so important we keep fundraising and raising awareness of Neuroblastoma....will blog as many pics as possible tonight and then will post some happier pics of him over the next week before we are back in hospital.............God bless xxxxx