Connor finally got home on Monday 9th July, we have been so busy just enjoying all being together, getting back into a "normal" routine and fitting in hospital appointments that this is the first time i have sat down to let u all know how our little star is doing...... he is GREAT!, his spirits always soar when he is home with his sisters and all his blood results are up and improving as proof.
Its the little things that make all the difference, waking up together, having breakfast together, watching dvds on the sofa together... just being together helps erase some painful memories of Connor at his lowest.
Its been a really difficult few months but we are finally seeing his little spark back and his energy is gradually building, his appetite - whilst still small is improving, and he is eating eggs for breakfast lunch and dinner, he missed being able to have them in hospital!! We are making fresh juice every day, have switched to goats milk products and are generally trying to get as much goodness in to his little body as we can, he isnt sitting still tho so is burning off so many of those precious calories!
We finally got to the cinema to see The Amazing Spiderman, and Ice Age 4, we squeezed in a long weekend in Weymouth before his repeat tests started this week... 7am at GOSH everyday!Were hoping to get back their again before Radiotherapy starts on 8th August.
Its the little things that make all the difference, waking up together, having breakfast together, watching dvds on the sofa together... just being together helps erase some painful memories of Connor at his lowest.
Its been a really difficult few months but we are finally seeing his little spark back and his energy is gradually building, his appetite - whilst still small is improving, and he is eating eggs for breakfast lunch and dinner, he missed being able to have them in hospital!! We are making fresh juice every day, have switched to goats milk products and are generally trying to get as much goodness in to his little body as we can, he isnt sitting still tho so is burning off so many of those precious calories!
We finally got to the cinema to see The Amazing Spiderman, and Ice Age 4, we squeezed in a long weekend in Weymouth before his repeat tests started this week... 7am at GOSH everyday!Were hoping to get back their again before Radiotherapy starts on 8th August.
All in all its been a crazy and tiring few weeks, this blog will have to be short and sweet as duty calls but we wanted to share some recent pics to show u how great Connor is doing and thank everyone again for their love and support xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx