1 week down:

Connor started his Intensive chemo last Sunday, so we've done just over 1 week of a possible 6- 12 week stay at GOSH. Time has literally flown, and up until yesterday Con has been well and not too down. We had to swap rooms last night as our first was so hot and you can't open the windows here, sunshine beating in from 5am so today the blinds are shut save for a tiny chink of sunlight as Con was staring out of the window looking so unbelievably sad, u don't have to be a mind reader to know what he was thinking - he just wants to be home,playing out in the sun. Saturday he woke up and said "mummy my medicine today is to have lots of ice-lollys!!!" he isnt to know that the side effect of one of the chemo drugs is a mouth full of open sores, the ice-lollys help lessen the amount of drug getting into his saliva somehow, sunday was his rest day and the end of his high dose chemo. He was a bit down so his sisters came up to see him for the first time in a week, he had not got out of bed all day and within seconds he was racing them to the play room!! He had a lovely afternoon but when they left he cried for an hour. Today his stem cells were re-infused, we will know in a week whether it has worked and the healthy cells have grafted together, it only took a 10 min drip infusion but the stench it's left behind is still stinking out our room 9 hours later, and it's now eminating from Con, poor mite! Whatever the cells are preserved in smells exactly like an open tin of sweet corn but 20 times stronger! Today was also the return of his sickness and nausea another great side effect of the chemo, he won't touch any food and is hardly drinking. So hard watching him upset and unhappy, knowing there's sod all you can do to help him, i asked him today what would make him happier, help cheer him up, after thinking for 5 minutes he said " mummy I know what I want, it will make me really happy" I was expecting the usual heartbreaking answer - to just be better, but he said "I know u will say no?" I promised him whatever he wanted he could have, however much it cost I would get it for him, I just hoped it wasn't a real life transformer or something else that was impossible!! so he said " mummy I want a puppy, no actually I want 2 puppies a boy one for me, and a girl one for Ella and Lola" How can u say no to such an innocent little wish!! I couldnt! So mummy and daddy promised that when he is all better, he will get his wish, and after 4 long hours of us googling every breed of dog in the world, with the biggest smile he chose a Beagle for him and a Maltese for the girls!! So.... even tho I really don't like pets and am not very good with animals - It looks like our family is getting bigger xxxx