Yesterday, after repeat test i was told that Connor had substantial hearing loss, the consultants dont know yet how badly the loss will effect him, but it is permenant, and he will need to wear a hearing aid.
We were told from the beginning there was always a risk of that particular side effect with one of the Chemotherapy drugs, but if im honest , it never really worried me, i was too preoccupied with the Cancer part.
The news was a massive shock, didnt see it coming but looking back over the last few months, as his mum, i should of picked up on how loud he likes his tv now, how often he ignores me when playing computer games - i put it down to being a typical boy, so engrossed in his games he would zone out, but we know now its because he cant actually hear other sounds if there is too much background noise.
It is just so unfair.
The doctors said in the long run, some hearing loss is a small price to pay, but how many more side effects is he going to suffer from? he already has a Denver Shunt in his chest from the "rare " possibilty of fluid build up after surgery, now the hearing loss, does this mean the chance of him being sterile is also more than just a slight risk?
I feel like he never gets a break, the last few days he has had screaming fits of anger and tears, that last over an hour each time, the slightest thing sets him off, losing a game, being tired, getting him the wrong drink, apparently the Chemo drugs wouldnt of made any inpact yet so its not them causing his outbursts, so its just Connor, and his way of telling us he has had enough.
How do u explain to him then that the worst is still to come?
We cant , we have to struggle through, let him rant and rave and get all his anger out and be here to comfort him and wipe his tears, cheer him up and tell him over again, like we do every single day.
" We love u so much Con, we wish we could make u better, we wish we could take it all away, be brave, u are doing so well, dont give up , be strong, its nearly all over darling, we will all be at home together soon " xxxxx
We were told from the beginning there was always a risk of that particular side effect with one of the Chemotherapy drugs, but if im honest , it never really worried me, i was too preoccupied with the Cancer part.
The news was a massive shock, didnt see it coming but looking back over the last few months, as his mum, i should of picked up on how loud he likes his tv now, how often he ignores me when playing computer games - i put it down to being a typical boy, so engrossed in his games he would zone out, but we know now its because he cant actually hear other sounds if there is too much background noise.
It is just so unfair.
The doctors said in the long run, some hearing loss is a small price to pay, but how many more side effects is he going to suffer from? he already has a Denver Shunt in his chest from the "rare " possibilty of fluid build up after surgery, now the hearing loss, does this mean the chance of him being sterile is also more than just a slight risk?
I feel like he never gets a break, the last few days he has had screaming fits of anger and tears, that last over an hour each time, the slightest thing sets him off, losing a game, being tired, getting him the wrong drink, apparently the Chemo drugs wouldnt of made any inpact yet so its not them causing his outbursts, so its just Connor, and his way of telling us he has had enough.
How do u explain to him then that the worst is still to come?
We cant , we have to struggle through, let him rant and rave and get all his anger out and be here to comfort him and wipe his tears, cheer him up and tell him over again, like we do every single day.
" We love u so much Con, we wish we could make u better, we wish we could take it all away, be brave, u are doing so well, dont give up , be strong, its nearly all over darling, we will all be at home together soon " xxxxx
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